午夜福利1000集合

午夜福利1000集合

Global cancer scheme lets people share data across the world

By Andy Coghlan

20 April 2018

New Scientist. Science news and long reads from expert journalists, covering developments in science, technology, health and the environment on the website and the magazine.

Tessa Jowell is the first to donate to global cancer database

Lucy Young / Evening Standard / eyevine

People with cancer will soon be able to donate their medical information to a global database聽aimed at discovering new treatments.

Tessa Jowell, former UK Labour minister, who has a rare brain cancer, today became the first person to sign up to the database, called the .

鈥淚t is my hope that through my cancer journey and sharing of my data, we will be able to develop better treatments for cancer and speed up the discovery of new ones,鈥 said Jowell at the launch of the initiative in London. 鈥淭ogether, with hope, we can achieve greater survival for cancer patients across the world.鈥

When the database becomes fully functional later this year, any individual with cancer will have access to a document 鈥 the 鈥淯niversal Patient Consent Form鈥 – that will allow them to make their medical and genetic data freely accessible to all cancer researchers.

Ultimately, it is hoped that as many people as possible will donate their data, although the focus will initially be on people with rare聽cancers.

The first project to utilise the database is a brain cancer clinical trial called GBM Agile, which will begin at the end of the year. The trial can be adapted as new information enters the database.

鈥淲e鈥檙e very supportive of the concept of data-sharing, and of this new effort to allow people to share their data,鈥 says Nikhil Wagle of the Broad Institute,聽in Massachusetts, Cambridge, which is among the research institutes considering using the database. 鈥淭he unique thing is the global nature of it,鈥 he says. 鈥淭here鈥檚 no existing project that covers multiple countries in the way this one does.鈥

The main impetus to launch the $500-million project came from Australian mining magnet and philanthropist, Andrew Forrest. He became so frustrated at the slow progress in treating a type of brain cancer called a glioblastoma that he set up a new charity called the Eliminate Cancer Initiative. The Universal Cancer Databank sprang from that.

鈥淚鈥檓 an entrepreneur not an oncologist, but I understand that extraordinary challenges require extraordinary measures,鈥 said Forrest. 鈥淚n this case that means patients and researchers from around the world sharing clinical and genomic data to break the gridlock on the most deadly cancers.鈥

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