午夜福利1000集合

午夜福利1000集合

A new DNA sequencing service wants to reward you for sharing your data

By Alice Klein

15 November 2018

George Church's firm wants to put genomes on blockchains

George Church’s firm wants to put genomes on blockchains

Deanne Fitzmaurice/NGS/Alamy

A new company co-founded by Harvard geneticist George Church wants to let people learn about their genome for free. The blockchain-secured service will sequence people’s genomes without charging a fee, and offer rewards to those who let third parties access their data.

Consumers can already get their DNA sequenced by companies like 23andMe and Helix, but it typically costs around $200. If a user consents, their results can be sold to third parties such as pharmaceutical firms, but users don鈥檛 receive any compensation or reward for this.

Nebula Genomics, which launches today, is聽intended to connect consumers interested in exploring their genetics with researchers looking for large DNA datasets to assist with drug development. Co-founder George Church is a well-known pioneering geneticist at Harvard University, whose other聽ambitions include bringing back the woolly mammoth, editing our genes to fix diseases, and reversing ageing.

The service offers to sequence your entire genome for free and secure it using a blockchain. You can then share your genomic data anonymously with companies or research institutes of your choosing, in return for “Nebula credits”.

Collecting credits

Users will also receive credits for sharing other health information, like whether聽they聽have diabetes or arthritis. This should聽help researchers identify patterns between certain gene variants and diseases, and potentially identify novel drug targets, says the company鈥檚 co-founder Dennis Grishin.

The credits聽earned by users will聽allow them to access other services on the Nebula platform. For example, they could be used to purchase information about聽a user’s聽risks of developing certain diseases like breast cancer or Alzheimer鈥檚 disease based on their聽genomic data.

For the time being, users won鈥檛 be able to convert the credits into hard cash. Pharmaceutical companies are currently prepared to pay upwards of $1000 for individual genomes, but Nebula hasn’t decided yet whether to allow cash transactions, says Grishin.

Jacqueline Savard at Deakin University in Australia warns that some drug companies may use people鈥檚 data in ways they aren’t aware of or can’t foresee. 鈥淧eople should be free to do what they want with their genomic data,鈥 she says. 鈥淏ut they need to be given clear information about how it will be used so they can make the right decisions.鈥

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